This is an omnibus protocol for studying patients with cystic fibrosis. The main purpose of the study is to obtain samples and data collected during standard clinical care for future research to expand knowledge of the natural history, clinical manifestations (phenotypes) and the genetic variants (genotypes) of cystic fibrosis....

Population

Primarily local population but also any adult patient/relative that moves into the area, either through CF Foundation or relocating for personal reasons.

Brief Title

Diagnosis and Treatment of Patients With Cystic Fibrosis

Official Title

Diagnosis and Treatment of Patients With Cystic Fibrosis

Brief Summary

This is an omnibus protocol for studying patients with cystic fibrosis. The main purpose of <br /> the study is to obtain samples and data collected during standard clinical care for future <br /> research to expand knowledge of the natural history, clinical manifestations (phenotypes) and <br /> the genetic variants (genotypes) of cystic fibrosis....

Detailed Description

This is an omnibus protocol for studying patients with cystic fibrosis. The main purpose of
the study is to obtain samples and data collected during standard clinical care for future
research to expand knowledge of the natural history, clinical manifestations (phenotypes) and
the genetic variants (genotypes) of cystic fibrosis.

Outcome Measures

Outcome measures are the tests that investigators perform to prove whether or not a treatment being tested in a clinical trial is having any effect.